You're Mama Don't Dance...

It has been a while since I last posted anything... in the world of Complex Regional Pain Syndrome: No news is good news!  My current treatment is working great!  I am receiving my spinal sympathetic injections every two and a half months like clockwork and still on the daily medication.

I still have extreme pain, usually about 1-2 weeks before my next injection but I will take it.  1-2 weeks in comparison to the hell that was my reality of excruciating  pain everyday is minimal.  I am one of the lucky few in the world of CRPS that have a treatment plan that is controlling their pain so well, I am truly blessed.

But despite a successful treatment plan there are still moments when CRPS robs me of everyday life.  About a week ago, two of my friends were married and my boyfriend, James  and I attended the reception. The day before I received my 8th injection.  My response after the injections are always variable.  This particular one left me with severe back pain and left hip numbness for about 2 days.  Due to the side effects of the injection, we were unable to attend the church ceremony.  But the thing that crushed me the most was not being able to dance the night away.

This was the first wedding ever that I didn't dance 'til the end of the reception.  It was painful to watch my friends party and dance.  I couldn't make it through the reception due to the physical and emotional pain.

But even if You're Mama don't dance... I am still blessed and hopeful with the amount of success we have had managing this horrific medical issue.

Shoes Off

Shoes off was always a rule in my home... I am a neat freak and the last thing I needed was to have my house all messed up by someone's shoes.   I completely respect and appreciate this rule in other people's homes.   I recently attended a party where we had to take our shoes off... my time at the party was minimal, my foot just can't do shoes off on a cold floor.

So now, I am a leave your shoes on kind of girl... CRPS can do that to a person.  I don't even think twice about someone having their shoes on in my home or even myself wearing shoes around my home.  More often than not if you stop by, you will see me with shoes on.

I am now 5 injections in... with no idea how many more will come and how many more will work.  I live my life with minimal pain 2.5 months at a time.  I never know if my next injection is the last.  It has gotten easier.  I have a plan, albeit temporary, I relish the moments of little pain and I don't take that time for granted.  I still have moments of frustration but they are fewer and further between.  But the part I love the most is that few minutes right before the injection... when all I feel is excitement and hope.

And one thing I have learned, is bring slippers to other peoples' homes.