It has been a while since I last posted anything... in the world of Complex Regional Pain Syndrome: No news is good news! My current treatment is working great! I am receiving my spinal sympathetic injections every two and a half months like clockwork and still on the daily medication.
I still have extreme pain, usually about 1-2 weeks before my next injection but I will take it. 1-2 weeks in comparison to the hell that was my reality of excruciating pain everyday is minimal. I am one of the lucky few in the world of CRPS that have a treatment plan that is controlling their pain so well, I am truly blessed.
But despite a successful treatment plan there are still moments when CRPS robs me of everyday life. About a week ago, two of my friends were married and my boyfriend, James and I attended the reception. The day before I received my 8th injection. My response after the injections are always variable. This particular one left me with severe back pain and left hip numbness for about 2 days. Due to the side effects of the injection, we were unable to attend the church ceremony. But the thing that crushed me the most was not being able to dance the night away.
This was the first wedding ever that I didn't dance 'til the end of the reception. It was painful to watch my friends party and dance. I couldn't make it through the reception due to the physical and emotional pain.
But even if You're Mama don't dance... I am still blessed and hopeful with the amount of success we have had managing this horrific medical issue.
